A policy demand should identify the evidence, the responsible institution, the remedy, and a way to tell whether it worked.
The gap: CDC’s recent registry analysis classified 23% as unexplained with incomplete case information. The ask: support consistent scene, autopsy, clinical-history, and case-classification information across jurisdictions. The measure: annual completeness by component and fewer incomplete cases.
CDC evidence →The gap to document: how often appropriate samples are retained and accessible for expert evaluation. The ask: a practical preservation and consent pathway, designed with medical examiners and families. The measure: samples usable for clinically indicated review or ethically approved research.
The gap to document: whether families can obtain understandable findings, appropriate referrals, and a later opportunity to consider research. The ask: an accountable family communication process that does not pressure participation. The measure: documented offers of follow-up and family-reported clarity and choice.
NIH’s categorical SIDS research spending was approximately $13 million in FY2024 and $12 million in FY2025. This category is narrower than all SUID-related work. We will map public and private funding before asserting a total gap, then make targeted requests tied to independent replication and measurable outcomes.
NIH funding data →These are proposed policy priorities, not enacted standards or claims that every jurisdiction has the same practice. Specific legislative text requires jurisdictional research and expert review.