01
Remember a baby
Tell us who your baby was. The family controls what remains private and what may one day be shared.
Explore remembrance →Every baby remembered. Every answer pursued.
A baby died suddenly. The search for answers must not end there.
We make room for the life a family loves—and work to close the gaps between a sudden infant death, a thorough investigation, and research that could save others.
I need information after a loss →The work
Three places to begin
02
Find your way through the questions
Understand the terms, the investigation, and the questions you may want to ask. No family has to do this alone.
For families →03
See where answers are lost
Read the documented gaps, our proposed remedies, and how progress will be measured.
See the agenda →Our reason for being
A child is more than a case. An unexplained death deserves more than a label.
Families deserve a place to remember the whole life of their baby. They also deserve to know what was investigated, what was found, and what remains unknown.
We will connect family experience, careful science, and concrete policy work—without asking grieving people to turn their memories into evidence.
Read our purpose →“Every baby deserves to be remembered as a whole person. Every sudden death deserves a serious search for answers.”
A measurable gap
An autopsy alone does not make a case complete.
23%
of cases in a recent CDC SUID registry analysis were classified as unexplained with incomplete case information. Most cases had an autopsy and a death investigation. The question is whether the information needed to reach and learn from a conclusion is complete.
Source: CDC, Characteristics of Sudden Unexpected Infant Deaths, 2020–2024. This is a registry finding, not an estimate that 23% of U.S. infant deaths lacked an autopsy.
Our direction
Turn a broken path into a clear one.
Complete investigations
Track whether the essential pieces of a case are gathered and available to those who need them.
See the policy work →Research that can be tested
Support replication of potential risk signals, biological mechanisms, and genetic findings.
See research priorities →Meaningful family follow-up
Ask whether families receive explanations, appropriate referrals, and a real choice about participating in research.
Read the family guide →