Family control
Memories remain under family control. Advocacy and research contact require separate choices.
The Every Baby Project is being formed around a simple obligation: honor the child, help the family, and make the search for answers more complete.
A sudden death takes away the chance to say what parents expected they would have a lifetime to say. We cannot give that time back. We can make room for a baby’s name, picture, voice, and story without demanding anything in return.
We can also ask hard questions of the systems that investigate deaths and fund research. We will do that with families, medical examiners, clinicians, scientists, and policymakers—showing the evidence, the limits of the evidence, and what would count as progress.
Memories remain under family control. Advocacy and research contact require separate choices.
Claims must be sourced, uncertainty visible, and promising findings tested independently.
We will publish goals, progress, corrections, governance, and finances as the organization is established.